Privacy and Respondent Confidentiality
UM Information Security Policies
- SPG 601.27: Information Security Policy
- SPG 601.12: Institutional Data Resource Management Policy
- SPG 601.7: Proper Use of Information Resources, Information Technology, and Networks at the University of Michigan
ISR and HRS Procedures
- Confidentiality Audit Signoff Checklist:
Use this checklist to document a pre-release confidentiality review of HRS public data.
- Confidentiality Audit Procedures:
An explanation of the steps to be followed in reviewing an HRS public data product prior to release.
- ISR Pledge to Safeguard Respondent Privacy
As an ISR employee, you are required to read and sign this.
- Maintaining Respondent Privacy and Anonymity -- Guidelines for HRS Restricted Data Users:
HRS Policy on publishing the results of analysis on confidential and/or restricted data.
-
Restricted Data Protection Plan Checklist: The suggestions listed in this
document are designed to assist potential users of HRS restricted data in preparing
data protection plans, but they can be used in any situation where confidential data are at risk.
- Policy Regarding Export of Microdata from the MiCDA Data Enclave:
The purpose of this policy is to provide:
- A framework for users wishing to export, as public data, respondent or household-level variables derived from
restricted data products maintained by the Data Enclave.
- Instructions for Enclave staff members charged with reviewing user requests.
- Documentation of the review process for use by the Data Confidentiality Committee and others.
Disclosure Control Links
- Guidelines for the Checking of Output in Research Data Centres
- Handbook on Statistical Disclosure Control v1.2 (ESSNet)
- Micro-ARGUS v4.2 User's Manual (ESSNet) and a program for
Exporting SAS datasets to ARGUS.
- Statistical Disclosure Control: Links to European projects
- Statistical Policy Working Paper 22 (Second version, 2005)
Human Subjects
- Confidentiality Audit Signoff Checklist: Use this checklist to document a pre-release confidentiality review of HRS public data.
- Confidentiality Audit Procedures: An explanation of the steps to be followed in reviewing an HRS public data product prior to release.
- ISR Pledge to Safeguard Respondent Privacy As an ISR employee, you are required to read and sign this.
- Maintaining Respondent Privacy and Anonymity -- Guidelines for HRS Restricted Data Users: HRS Policy on publishing the results of analysis on confidential and/or restricted data.
- Restricted Data Protection Plan Checklist: The suggestions listed in this document are designed to assist potential users of HRS restricted data in preparing data protection plans, but they can be used in any situation where confidential data are at risk.
- Policy Regarding Export of Microdata from the MiCDA Data Enclave:
The purpose of this policy is to provide:
- A framework for users wishing to export, as public data, respondent or household-level variables derived from restricted data products maintained by the Data Enclave.
- Instructions for Enclave staff members charged with reviewing user requests.
- Documentation of the review process for use by the Data Confidentiality Committee and others.
Disclosure Control Links
- Guidelines for the Checking of Output in Research Data Centres
- Handbook on Statistical Disclosure Control v1.2 (ESSNet)
- Micro-ARGUS v4.2 User's Manual (ESSNet) and a program for
Exporting SAS datasets to ARGUS.
- Statistical Disclosure Control: Links to European projects
- Statistical Policy Working Paper 22 (Second version, 2005)
Human Subjects
NIH Policy on Protection of Human Research Participants: Investigators investigators seeking federal research funding from the Public Health Service (PHS) must provide documentation that key personnel on their grant have completed a course on the protection of human research participants. This policy affects all prospective NIH research proposals as well as any non-competing renewal applications that include research with human participants. The following links provide more information on this issue.
- Online University of Michigan Training at http://eresearch.umich.edu/. Note: follow this link if you need to complete the NIH Human Subjects Education requirement.
- Policy Statement from NIH
concerning required education in the protection of human research participants.
- Frequently Asked Questions about the
requirement for education on the protection of human subjects.
- NIH Bioethics Interest Group.